CDE ID | CDE Description | * 421 | EDRN Participant ID (Go To: 423) |
* 423 | EDRN Protocol ID (Go To: 422) |
* 422 | EDRN Site ID (Go To: 929) |
* 929 | EDRN Staff ID of the person who collected the data: (Go To: 1219) |
* 1219 | Date of contact (MM/DD/YYYY): (Go To: 1322) |
* 1322 | Hispanic or Latino (Are you Hispanic or Latino?) (Go To: 1315) |
| Permissible Values (value): | No (0) |
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* 1315 | Race (What is your race? Check all that apply.) (Go To: 1567) |
| Permissible Values (value): | White (1) |
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| | Black or African-American (2) |
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| | American Indian or Alaska Native (3) |
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| | Native Hawaiian or other Pacific Islander (7) |
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| | Other, specify: (97) (Go To: 1294) |
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* 1294 | Race (Other, specify) (Go To: 1567) |
* 1567 | Which race do you consider to be your primary racial background? (Go To: 1300) |
| Permissible Values (value): | White (1) |
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| | Black or African-American (2) |
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| | American Indian or Alaska Native (3) |
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| | Native Hawaiian or other Pacific Islander (7) |
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| | Other, specify: (97) (Go To: 1579) |
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* 1579 | Primary racial background (Other, specify) (Go To: 1300) |
* 1300 | Ever smoke cigarettes regularly, at least one a day for a year or more? (Did you ever smoke cigarettes regularly, at least one a day for a year or more?) (Go To: 2177) |
| Permissible Values (value): | No (0) |
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* 1299 | Currently smoke at least one cigarette a day? (Do you currently smoke cigarettes regularly, at least one a day?) (Go To: 1297) |
| Permissible Values (value): | No (0) (Go To: 1298) |
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* 1298 | Age quit smoking cigarettes? (How old were you when you permanently quit smoking cigarettes?) (Go To: 1297) |
* 1297 | Age first began smoking cigarettes regularly, at least one a day? (How old were you when you began smoking cigarettes regularly, at least one a day?) (Go To: 1325) |
* 1325 | Average number of cigarettes smoked per day? (During the time you have smoked, on average, how many cigarettes did you smoke per day?) (Go To: 1301) |
* 1301 | Total number of years smoked? (How many years total have you smoked?) (Go To: 2177) |
* 2177 | Have you ever been told by a doctor that you have any of the following genitourinary conditions? (Check all that apply.) (Go To: 2706) |
| Permissible Values (value): | [Males only] BPH (Benign prostatic hypertrophy) (1) |
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| | Hematuria (blood in the urine) (2) |
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| | [Males only] Prostatitis (an inflamed prostate) (3) |
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| | Urinary tract infection (4) |
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| | Urethritis (inflammation of the urethra) (6) |
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| | Other type of genitourinary tract infection (7) |
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| | Interstitial cystitis (9) |
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* 2706 | Have you ever had any of the following procedures or problems? (Check all that apply.) (Go To: End of Form) |
| Permissible Values (value): | [Males only] Transurethral resection of the prostate (TURP) (1) |
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| | [Males only] Transurethral incision of the prostate (TUIP) (2) |
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| | [Males only] Laser treatment for the prostate (interstitial laser or Niagra PVP) (3) |
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| | [Males only] Microwave or heat treatment for the prostate (TUNA or TUMT) (4) |
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| | Simple prostatectomy (10) |
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| | Radical prostatectomy (11) |
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* 1572 | Have you ever taken any of the following medications or supplements for a prostate or genitourinary condition? (Check all that apply.) (Go To: 1574) |
| Permissible Values (value): | 5-alpha reductase inhibitors (eg Finasteride, Avodart or Proscar) (1) |
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| | Alpha-blockers (eg Doxazoin, Terazosin, Tamsulosin, others) (2) |
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| | Androgens (eg Testosterone, Androgel, others) (4) |
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| | Other medications for prostate related conditions, specify: (97) (Go To: 1573) |
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1573 | Other prostate or genitourinary medications, specify: (Go To: 1574) |
1574 | When were the medications or supplements for your prostate or genitourinary condition last taken? (Go To: 1575) |
| Permissible Values (value): | Within the past month (1) |
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| | More than 1 month ago (2) |
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1575 | Total number of months taken (Go To: 1307) |
* 1307 | Ever had cancer [other than basal/squamous cell skin cancer] confirmed by a doctor? (Have you ever had cancer [other than basal/squamous cell skin cancer] confirmed by a doctor?) (Go To: End of Form) |
| Permissible Values (value): | No (0) |
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* 1341 | Cancer type/location (Go To: End of Form) |
| Permissible Values (value): | Bladder (1) |
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| | Head & neck (mouth, nose, and throat) (8) |
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| | Lymphoma, including Hodgkins (13) |
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| | Skin (melanoma, no basal or squamous) (18) |
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* 2732 | Cancer type name: (Go To: 1333) |
* 1333 | Date of diagnosis (MM/YYYY): (Go To: 1302) |
* 1302 | Age at diagnosis (Go To: 2650) |
* 2650 | Participating in other studies? (Go To: End of Form) |
| Permissible Values (value): | No (0) |
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* 1568 | Have any of the participants living or deceased first or second-degree blood relatives been diagnosed with prostate cancer? (Go To: 2194) |
| Permissible Values (value): | No (0) |
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1569 | How many of the participant´s living or deceased first or second-degree blood relatives have been diagnosed with prostate cancer? (Go To: 1570) |
1570 | How many of the participant´s living or deceased first or second-degree blood relatives have died of prostate cancer? (Go To: 2194) |
* 2194 | Have any of the participant's living or deceased second-degree blood relatives been diagnosed with prostate cancer? (Go To: 1097) |
| Permissible Values (value): | No (0) |
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2195 | How many of the participant´s living or deceased second-degree blood relatives have been diagnosed with prostate cancer? (Go To: 2654) |
2654 | How many of the participant´s second-degree blood relatives have died of prostate cancer? (Go To: 1097) |
1097 | Comments (do not include any participant identifiers) (Go To: End of Form) |