| CDE ID | CDE Description | | * 421 | EDRN Participant ID (Go To: 423) |
| * 423 | EDRN Protocol ID (Go To: 422) |
| * 422 | EDRN Site ID (Go To: 929) |
| * 929 | EDRN Staff ID of the person who collected the data: (Go To: 1319) |
| * 1319 | Date participant signed consent form (MM/DD/YYYY): (Go To: 2824) |
| * 2824 | Has the participant authorized sending his or her genetic information to one or more databases for future research? (Go To: 3256) |
| | | Permissible Values (value): | No (0) |
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| * 3256 | Consensus guidelines (Check all that apply): (Go To: 3257) |
| | | Permissible Values (value): | Symptomatic from pancreatic cyst (1) |
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| | | | Side branch cyst along with main duct involvement (mixed main duct-side branch IPMN) (2) |
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| | | | Presence of mural nodules in cyst (3) |
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| | | | At least one cyst greater than 3 cm in size (4) |
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| | | | Surgeon decided to remove cyst (5) (Go To: 3994) |
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| | | | None (44) (Go To: End of Form) |
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| * 3994 | Reason for surgeon’s decision to remove cyst (check all that apply) (Go To: 3257) |
| | | Permissible Values (value): | Patient age (1) |
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| | | | Emotional desire to remove cyst (2) |
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| | | | Other, specify: (97) (Go To: 3995) |
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| * 3995 | Reason for surgeon’s decision to remove cyst (Other, specify) (Go To: 3257) |
| * 3257 | Type of referral: (Go To: 2631) |
| | | Permissible Values (value): | Surgery (3) |
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| | | | EUS (Endoscopic Ultrasound) (5) |
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| | | | None (44) (Go To: End of Form) |
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| * 2631 | Has the participant authorized future contact for research purposes? (Go To: 3316) |
| | | Permissible Values (value): | No (0) |
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| * 3316 | Has the participant authorized access to their medical records for research purposes? (Go To: 1097) |
| | | Permissible Values (value): | No (0) |
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| 1097 | Comments (do not include any participant identifiers) (Go To: End of Form) |