Form:PaCa Bake-off #2 Participant Clinical v1.0


CDE IDCDE Description
* 1063Site Participant ID (Go To: 422)
* 422EDRN Site ID (Go To: 2841)
* 2841Matched pair ID: (Go To: 4921)
* 4921Final bin, pancreatic (Go To: 578)
 
Permissible Values (value):Resectable PDAC (1)
 
 MCN-High (2)
 
 IPMN-High (3)
 
 MCN-Low (4)
 
 IPMN-Low (5)
 
 Benign cysts: SCA, pseudocysts, retention (6)
 
 Cholangiocarcinoma (7)
 
 Neuroendocrine tumors (8)
 
 Ampullary carcinoma (9)
 
 Pancreatitis (10)
 
 Benign biliary obstruction (11)
 
 EUS with benign or normal pancreas (12)
 
 Healthy control (13)
 
 Healthy control with family history (14)
* 578Age at specimen collection (Go To: 1315)
* 1315Race (What is your race? Check all that apply.) (Go To: 1322)
 
Permissible Values (value):White (1)
 
 Black or African-American (2)
 
 American Indian or Alaska Native (3)
 
 Asian (4)
 
 Native Hawaiian or other Pacific Islander (7)
 
 Other (95)
 
 Unknown (99)
* 1322Hispanic or Latino (Are you Hispanic or Latino?) (Go To: 1320)
 
Permissible Values (value):No (0)
 
 Yes (1)
 
 Unknown (99)
* 1320Gender (What is your gender?) (Go To: 2778)
 
Permissible Values (value):Male (1)
 
 Female (2)
 
 Unknown (99)
* 2778Smoking status: (Go To: 4796)
 
Permissible Values (value):Never (1)
 
 Former (2)
 
 Current (3)
 
 Smoker, but current or former status not specified (4)
 
 Unknown (99)
* 4796How often do you have a drink containing alcohol? (Go To: 4797)
 
Permissible Values (value):Never (1)
 
 Monthly or less (2)
 
 2-4 times a month (3)
 
 2-3 times a week (4)
 
 4 or more times a week (5)
 
 Unknown (99)
* 4797On the days that you do drink, how many drinks do you have on average? (Go To: 3156)
 
Permissible Values (value):1-2 (1)
 
 3-4 (2)
 
 5-6 (3)
 
 7-8 (4)
 
 9-10 (5)
 
 >10 (6)
 
 Not applicable (98)
 
 Unknown (99)
* 3156Ever diagnosed with diabetes by a doctor? (Go To: 3211)
 
Permissible Values (value):No (0)
 
 Yes (1)
 
 Unknown (99)
* 3211Age when diagnosed with diabetes: (Go To: 3305)
* 3305Pancreatic cyst or lesion pathology: (Go To: 3315)
 
Permissible Values (value):IPMN (2)
 
 MCN (4)
 
 Microcystic adenoma (serous cystadenoma) (5)
 
 Pseudocyst (6)
 
 Retention cyst (7)
 
 Solid pseudopapillary tumor (9)
 
 Cystic neuroendocrine tumor (10)
 
 Other, specify: (97)
 
 Not applicable (98)
   3315Cyst/lesion pathology (Other, specify:) (Go To: 1302)
* 1302Age at diagnosis (Go To: 4875)
* 4875Stage group, pancreatic (Go To: 4876)
 
Permissible Values (value):Stage 0 (0)
 
 Stage IA (11)
 
 Stage IB (14)
 
 Stage IIA (21)
 
 Stage IIB (25)
 
 Stage III (30)
 
 Stage IV (40)
 
 Not applicable (98)
* 4876Pancreatic cancer histologic type (Go To: 4877)
 
Permissible Values (value):Endocrine (3)
 
 Adenocarcinoma (4)
 
 Ampullary (5)
 
 Mucinous (13)
 
 Other, specify: (97)
 
 Not applicable (98)
   4877Pancreatic cancer histologic type (Other, specify) (Go To: 3306)
* 3306Degree of dysplasia (cyst): (Go To: 1097)
 
Permissible Values (value):Low grade (1)
 
 Intermediate grade (2)
 
 High grade (3)
 
 Not applicable (98)
 
 Unknown (99)
   1097Comments (do not include any participant identifiers) (Go To: 2749)
   2749Coordinating center data comments: (Go To: 423)
* 423EDRN Protocol ID (Go To: End of Form)