Form: (EXPIRED) Canary: PASS Baseline Demographics v2.0


CDE IDCDE Description
* 421EDRN Participant ID (Go To: 423)
* 423EDRN Protocol ID (Go To: 422)
* 422EDRN Site ID (Go To: 929)
* 929EDRN Staff ID of the person who collected the data: (Go To: 1219)
* 1219Date of contact (MM/DD/YYYY): (Go To: 1302)
* 1302Age at diagnosis (Go To: 2177)
* 2177Have you ever been told by a doctor that you have any of the following genitourinary conditions? (Check all that apply.) (Go To: 1292)
 
Permissible Values (value):No (0)
 
 [Males only] BPH (Benign prostatic hypertrophy) (1) (Go To: 2206)
 
 [Males only] Prostatitis (an inflamed prostate) (3) (Go To: 2206)
 
 Unknown/refused (99)
* 2206Prior treatment(s): (Go To: 1292)
 
Permissible Values (value):Medication (1)
 
 Surgery (3)
 
 None (44)
 
 Other, specify: (97) (Go To: 2205)
* 2205Prior treatment (Other, specify): (Go To: 1292)
* 1292Height [in inches] (What is your total current height in inches?) (Go To: 1295)
* 1295Weight [in pounds] (What is your current weight [in pounds]? (Go To: 1576)
* 1576American Urological Association (AUA) symptom score: (Go To: 1691)
* 1691Quality of life due to urinary symptoms: (Go To: 1322)
 
Permissible Values (value):Delighted (0)
 
 Pleased (1)
 
 Mostly satisfied (2)
 
 Mixed (3)
 
 Mostly dissatisfied (4)
 
 Unhappy (5)
 
 Terrible (6)
 
 Not collected (90)
* 1322Hispanic or Latino (Are you Hispanic or Latino?) (Go To: 1315)
 
Permissible Values (value):No (0)
 
 Yes (1)
 
 Unknown/refused (9)
* 1315Race (What is your race? Check all that apply.) (Go To: 4049)
 
Permissible Values (value):White (1)
 
 Black or African-American (2)
 
 American Indian or Alaska Native (3)
 
 Asian (4)
 
 Native Hawaiian or other Pacific Islander (7)
 
 Other, specify: (97) (Go To: 1294)
 
 Unknown/refused (99)
* 1294Race (Other, specify) (Go To: 4049)
* 4049Marital status (SEER) (Go To: 1296)
 
Permissible Values (value):Single (never married) (1)
 
 Married (including common law) (2)
 
 Separated (3)
 
 Divorced (4)
 
 Widowed (5)
 
 Marriage-like relationship (20)
 
 Unknown (99)
* 1296Highest level of education completed: (Go To: 1300)
 
Permissible Values (value):Less than high school graduate (1)
 
 High school graduate or completed GED (2)
 
 Some college or technical school (3)
 
 College graduate (4)
 
 Post graduate degree (5)
 
 Unknown (99)
* 1300Ever smoke cigarettes regularly, at least one a day for a year or more? (Did you ever smoke cigarettes regularly, at least one a day for a year or more?) (Go To: 1328)
 
Permissible Values (value):No (0)
 
 Yes (1) (Go To: 1299)
 
 Unknown/refused (9)
* 1299Currently smoke at least one cigarette a day? (Do you currently smoke cigarettes regularly, at least one a day?) (Go To: 1325)
 
Permissible Values (value):No (0) (Go To: 1298)
 
 Yes (1)
 
 Unknown/refused (9)
   1298Age quit smoking cigarettes? (How old were you when you permanently quit smoking cigarettes?) (Go To: 1325)
   1325Average number of cigarettes smoked per day? (During the time you have smoked, on average, how many cigarettes did you smoke per day?) (Go To: 1297)
   1297Age first began smoking cigarettes regularly, at least one a day? (How old were you when you began smoking cigarettes regularly, at least one a day?) (Go To: 1328)
* 1328Has participant ever had at least one drink of alcohol [beer, liquor, wine, or wine coolers] per month during a twelve-month period? (Have you ever had at least one drink of alcohol [beer, liquor, wine, or wine coolers] per month during a twelve-month period?) (Go To: 1349)
 
Permissible Values (value):No (0)
 
 Yes (1) (Go To: 1329)
 
 Unknown/refused (9)
   1329On average, how many glasses of wine do you drink? Count a four-ounce glass of wine as one drink. (Go To: 1330)
 
Permissible Values (value):None (4)
 
 <1 per week (5)
 
 1-6 per week (6)
 
 1-2 per day (7)
 
 3-5 per day (8)
 
 6+ per day (9)
   1330On average, how many glasses/cans of beer do you drink? Count a twelve-ounce can as one beer. (Go To: 1331)
 
Permissible Values (value):None (4)
 
 <1 per week (5)
 
 1-6 per week (6)
 
 1-2 per day (7)
 
 3-5 per day (8)
 
 6+ per day (9)
   1331On average, how many shots of hard liquor or mixed drinks do you drink? Count one shot (1 1/2 ounces) or one mixed drink as one drink. (Go To: 1349)
 
Permissible Values (value):None (4)
 
 <1 per week (5)
 
 1-6 per week (6)
 
 1-2 per day (7)
 
 3-5 per day (8)
 
 6+ per day (9)
* 1349Have any of the participant´s living and deceased first degree blood relatives been diagnosed with cancer [other than basal/squamous cell skin cancer]? (Have any of your living and deceased first degree blood relatives (biological parents, siblings, children) been diagnosed with cancer [other than basal/squamous cell skin cancer]? [Not including half-siblings, step-siblings, step-parents, or step-children]. (Go To: 1097)
 
Permissible Values (value):No (0)
 
 Yes (1) (Go To: 3143)
 
 Unknown/refused (9)
* 3143Number of relative´s cancers to record: (Go To: 3202)
 
Permissible Values (value):1 (1)
 
 2 (2)
 
 3 (3)
 
 4 (4)
 
 5 (5)
 
 6 (6)
 
 7 (7)
 
 8 (8)
 
 9 (9)
 
 10 (10)
* 3202Line number or identifier 3 (system-generated): (Go To: 1351)
* 1351Relative type (mother, brother, etc) (Go To: 1311)
 
Permissible Values (value):Brother (1)
 
 Sister (2)
 
 Son (3)
 
 Daughter (4)
 
 Father (5)
 
 Mother (6)
 
 Refused (88)
 
 Unknown (99)
* 1311First primary cancer: (Go To: 1430)
 
Permissible Values (value):Bladder (1)
 
 Bone (2)
 
 Brain (3)
 
 Breast (4)
 
 Cervix (5)
 
 Colon (6)
 
 Endometrium (22)
 
 Esophagus (7)
 
 Fallopian tube (45)
 
 Gall bladder (40)
 
 Head & neck (mouth, nose, and throat) (8)
 
 Kidney (9)
 
 Leukemia (11)
 
 Liver (10)
 
 Lung (12)
 
 Lymphoma, including Hodgkins (13)
 
 Mesothelioma (42)
 
 Multiple myeloma (44)
 
 Ovary (14)
 
 Pancreas (15)
 
 Primary peritoneal cancer (46)
 
 Prostate (16)
 
 Rectum (17)
 
 Skin (melanoma, no basal or squamous) (18)
 
 Stomach (19)
 
 Testis (24)
 
 Thyroid (20)
 
 Uterus (21)
 
 Vagina (26)
 
 Other, specify: (97) (Go To: 1310)
 
 Refused (88)
 
 Unknown (99)
* 1310Cancer type/Location (Other, specify) (Go To: 1430)
   1430Relative´s age when diagnosed (Go To: 1317)
   1317Subsequent primary cancer(s): (Go To: 3272)
 
Permissible Values (value):None (0)
 
 Bladder (1)
 
 Bone (2)
 
 Brain (3)
 
 Breast (4)
 
 Cervix (5)
 
 Colon (6)
 
 Endometrium (22)
 
 Esophagus (7)
 
 Fallopian tube (45)
 
 Gall bladder (40)
 
 Head & neck (mouth, nose, and throat) (8)
 
 Kidney (9)
 
 Leukemia (11)
 
 Liver (10)
 
 Lung (12)
 
 Lymphoma, including Hodgkins (13)
 
 Mesothelioma (42)
 
 Multiple myeloma (44)
 
 Ovary (14)
 
 Pancreas (15)
 
 Primary peritoneal cancer (46)
 
 Prostate (16)
 
 Rectum (17)
 
 Skin (melanoma, no basal or squamous) (18)
 
 Stomach (19)
 
 Testis (24)
 
 Thyroid (20)
 
 Uterus (21)
 
 Vagina (26)
 
 Other (95)
 
 Refused (88)
 
 Unknown (99)
   3272Loop-specific comments 5: (Go To: 1097)
   1097Comments (do not include any participant identifiers) (Go To: End of Form)