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CARET Data Collection Forms and Contact Schedule
Contact schedule¹
(
-- collection was at all time points unless otherwise noted)
CV = Clinic Visit PC = Phone Contact MQ=Mailed Questionnaire
Post-intervention phases
Data collection forms²
Baseline
(1985-1994)
Intervention phase
(1985-1995)
Transition
(1996-1997)
Follow-up
(1997-2005)
CV (x1)
CV (x1/year)
&
PC (x2/year)
CV (x1)
&
PC (x2)
PC or MQ (1x/year)
 
Cancer and death endpoints
Confirmation of Cancer Endpoint
Confirmation of Death Endpoint
N/A
Blood specimens
Blood Collection and Processing
(CVs, every two
years only)
(CV only)
Dietary intake
Food Frequency Questionnaire
(CVs, every two
years only)
(CV only)
Smoking history
Questionnaire #1
(baseline, Q.1-Q.7)
Health questionnaire #4
(follow-up, Q.27)
Supplemental vitamin use
Contact Summary
(Q.89)
(CVs only)
Health history
Health Questionnaire #4
(CVs only)
Family history of cancer
Questionnaire #1
(Q.9-Q.11)
Respiratory history
Respiratory History Questionnaire
(CVs, every two
years only)
(CV only)
Spirometry
(asbestos workers only)
Spirometry
(CVs, every two
years thereafter)
(CV only)
X-ray
(asbestos workers only)
Study Center X-Ray Review
Work history
Questionnaire #1
(Q.13-Q.17)
Demographics
(age, race, sex, marital status³,
and education level)
Questionnarie #1
(Q.18-Q.21)
Contact Information Update
Height, weight, blood pressure
Contact Summary
(Q.59-Q.61)
(CVs only)
(CV only)
¹ Reflects contact schedule for most participants; participants enrolled during the pilot phase were contacted more frequently than those enrolled during the full-scale trials. Contact schedule specifics can be found
here.
² Examples of commonly used data collection forms are provided. Forms were modified over the course of the study, but data items within the questionnaires were generally consistent, if not identical.
³ Marital status was collected at all contacts
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2025
by COMPASS, Fred Hutchinson Cancer Center
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