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CARET Data Collection Forms and Contact Schedule


 Contact schedule¹
( -- collection was at all time points unless otherwise noted)

CV = Clinic Visit  PC = Phone Contact MQ=Mailed Questionnaire
   Post-intervention phases
 Data collection forms²Baseline
(1985-1994)
Intervention phase
(1985-1995)
Transition
(1996-1997)
Follow-up
(1997-2005)
  CV (x1)CV (x1/year)
&
PC (x2/year)
CV (x1)
&
PC (x2)
PC or MQ (1x/year)
 Cancer and death endpoints Confirmation of Cancer Endpoint

Confirmation of Death Endpoint
N/A
 Blood specimensBlood Collection and Processing
(CVs, every two
years only)

(CV only)
 
 Dietary intakeFood Frequency Questionnaire
(CVs, every two
years only)

(CV only)
 
 Smoking historyQuestionnaire #1
  (baseline, Q.1-Q.7)

Health questionnaire #4
  (follow-up, Q.27)
 Supplemental vitamin useContact Summary
  (Q.89)

(CVs only)
 
 Health history Health Questionnaire #4
(CVs only)
 
 Family history of cancerQuestionnaire #1
  (Q.9-Q.11)
   
 Respiratory historyRespiratory History Questionnaire
(CVs, every two
years only)

(CV only)
 
 Spirometry
 (asbestos workers only)
Spirometry
(CVs, every two
years thereafter)

(CV only)
 
 X-ray
 (asbestos workers only)
Study Center X-Ray Review   
 Work historyQuestionnaire #1
  (Q.13-Q.17)
   
 Demographics
 (age, race, sex, marital status³,
  and education level)
Questionnarie #1
  (Q.18-Q.21)

Contact Information Update
   
 Height, weight, blood pressureContact Summary
  (Q.59-Q.61)

(CVs only)
(CV only) 
¹ Reflects contact schedule for most participants; participants enrolled during the pilot phase were contacted more frequently than those enrolled during the full-scale trials. Contact schedule specifics can be found here.
² Examples of commonly used data collection forms are provided. Forms were modified over the course of the study, but data items within the questionnaires were generally consistent, if not identical.
³ Marital status was collected at all contacts
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